What is Ehlers-Danlos syndrome, or EDS?

EDS is a group of disorders that affect connective tissues supporting the skin, bones and blood vessels, according to the National Library of Medicine. Dr. Alissa Zingman, a Musculoskeletal Preventive Medicine physician and co-founder of the Ehlers-Danlos Syndrome Research Foundation, told CelebHomes News.

It could also be something as simple as back pain in a young person, neck pain or headaches. It can also have an impact on the digestive tract, so people may experience cramping and abdominal pain. Dr. Zingman herself suffers from the disorder, as well as POTS and MCAS. 

How is EDS treated?

CelebHomes News’ Zingman said that a patient might be visiting a gastroenterologist to address their GI symptoms. They may see an orthopedist for the neck or shoulders and a neurosurgeon if they have pain in their lower back. If they have trouble paying attention, psychiatrists may be recommended. For their headaches, they may see a neurologist.

Dr.Alina Sharinn (formerly Rabinovich), a New York neurologist, said, “Important for a neurologist like myself are vascular issues, so [patients]An arterial aneurysm is when the vessel bursts and can cause bleeding. Or they may develop arterial dissection. This is when the vessel’s wall ruptures and creates an extra lumen. Plaque formation can also occur, and can lead to a stroke. 

The National Cancer Institute defines lumen to be the “cavity” or channel in a tubular or tube-like organ like a blood vessel, intestine or other tubes.